What are my chances of having another baby with hypoplastic left heart syndrome?
Your own individual recurrence risk will be given to you by your medical team, but the range could be anything from 2-3% to 8%. The factors influencing this include the exact nature of the condition your previous child had and your individual family background.
How long do babies with HLHS live?
There are currently estimates of three- to five-year survival rates of 70% for infants who have the stage I repair. For children who survive to the age of 12 months, long-term survival is about 90 percent. The size and function of the right ventricle are important in determining the child’s outcome after surgery.
Can a baby survive HLHS?
Babies with hypoplastic left heart syndrome will not survive without surgery. Most babies will need a series of 3 surgeries during their first 2 to 3 years of life. After the surgeries, children will need special care and be monitored for complications.
What are the chances of having another child with congenital heart disease?
Individuals who have a personal or family history of CHD have a higher chance of a heart defect happening again in the family. For most people, the risk of having another child with a congenital heart defect ranges from 3-5 percent. However, for those who have particularly rare conditions, the risk can go up to 50%.
What are the long term effects of hypoplastic left heart syndrome?
In the long term, these children have an increased risk for complications such as heart failure and heart rhythm problems. They are also at risk for digestive and liver problems. Children with HLHS after surgery have lower exercise tolerance. Some children will need a heart transplant to survive into adulthood.
What are the 3 surgeries for HLHS?
The series of three reconstructive operations to repair HLHS — the Norwood, Glenn and Fontan procedures — is known as ” Staged Reconstruction .” Frequent surveillance in infancy and early childhood is important to minimize risk factors for the eventual Fontan operation.
How old is the oldest HLHS Survivor?
The oldest survivor after the Fontan operation was 67 years of age (Fontan at age 39 years)….Results.
| Male | 637 (61) |
|---|---|
| Hypoplastic left heart syndrome | 24 (2) |
| Other | 314 (30) |
Can you live a normal life with HLHS?
Most babies who receive treatment for HLHS live a healthy life. Children with this condition need lifelong follow-up with a cardiologist.
What is the most severe congenital heart defect?
Critical congenital heart defects (also called critical CHDs or critical congenital heart disease) are the most serious congenital heart defects. Babies with critical CHDs need surgery or other treatment within the first year of life.
Is HLHS a congenital heart defect?
Hypoplastic left heart syndrome is one type of congenital heart defect. Congenital means present at birth. Because a baby with this defect needs surgery or other procedures soon after birth, HLHS is considered a critical congenital heart defect (CCHD).
Does HLHS run in families?
HLHS typically occurs sporadically (randomly), in otherwise normal babies with no family history of HLHS. In a few children, isolated HLHS is known to be genetic.
Is HLHS a disability?
If your child has been born with Hypoplastic Left Heart Syndrome it may help to know that he or she will automatically qualify for Social Security Disability benefits because the SSA has recently determined the condition meets the criteria for Compassionate Allowance status.