How do you respond to ALS diagnosis?

How do you respond to ALS diagnosis?

1. Take Time to Adjust. Being diagnosed with ALS is nothing less than shocking.
2. Be Hopeful. Your attitude is everything.
3. Think Beyond Physical Changes.
4. Seek Early Treatment.
5. Take Charge of Your Care.
6. Engage Family and Friends.
7. Join a Support Group.

What were your first ALS symptoms?

Early symptoms include:

• Muscle twitches in the arm, leg, shoulder, or tongue.
• Muscle cramps.
• Tight and stiff muscles (spasticity)
• Muscle weakness affecting an arm, a leg, the neck, or diaphragm.
• Slurred and nasal speech.
• Difficulty chewing or swallowing.

How did you realize ALS?

Some of the earliest and most common signs of ALS are: Difficulty walking or doing normal, day-to-day activities. Muscle twitching in the arms, shoulders, legs or tongue (also known as fasciculations) Muscle cramps, especially in the hands and feet.

How fast does ALS progress after first symptoms?

And you’re right; it takes on average about nine to 12 months for someone to be diagnosed with ALS, from the time they first began to notice symptoms. Getting the proper evaluation in a timely way is important, especially since we have a drug, Rilutek, which has been shown to help delay the progression of ALS.

How do you make ALS comfortable?

Offer to visit with the person with ALS so the caregiver can run errands, attend a support group meeting, do a favourite activity, or attend a religious service. Even if the caregiver does not leave the house, this will provide some personal time.

How is the family of a person with ALS affected?

Family caregivers of ALS patients are deeply affected by the illness and often experience burden due to physical strain, emotional tension, personal and social limitations (Rabkin et al., 2000), anxiety and depression (Chiò et al., 2005; Pagnini et al., 2012).

What does ALS feel like in legs?

What are the symptoms? The first sign of ALS is often weakness in one leg, one hand, the face, or the tongue. The weakness slowly spreads to both arms and both legs. This happens because as the motor neurons slowly die, they stop sending signals to the muscles.

Is twitching a first symptom of ALS?

What are the symptoms? The onset of ALS may be so subtle that the symptoms are overlooked. The earliest symptoms may include fasciculations (muscle twitches), cramps, tight and stiff muscles (spasticity), muscle weakness affecting a hand, arm, leg, or foot, slurred and nasal speech, or difficulty chewing or swallowing.

Do early ALS symptoms come and go?

Most people with ALS live 5 years or less after their diagnosis, but some live much longer. Research is underway to find treatments to extend and improve the quality of life. With MS, the course of the disease is harder to predict. Your symptoms may come and go, and may even disappear for months or years at a time.

Does ALS make you sleep a lot?

Strong feelings of being sleepy during daytime hours are much more common in amyotrophic lateral sclerosis (ALS) patients than the general public, and appear to be associated with poorer cognitive skills and greater behavioral problems, a study from China reports.

Does ALS cause sleep problems?

Sleep disturbances are extremely common in patients with ALS and substantially add to the burden of disease for both patients and caregivers. Disruption of sleep can be caused by physical symptoms, such as muscle cramps, pain, reduced mobility, spasticity, mucus retention, and restless legs syndrome.